• Uncategorised
• February 23, 2025

• Uncategorised
• September 13, 2024

A day to shine a light on CCHS as a little-known rare condition.  It’s the 10th Anniversary of this campaign which aims to inform and educate people about CCHS to support faster diagnosis and the need for more research to develop improved care and treatment for those affected.  Help us spread the word! To mark this year’s campaign, we are …