Letter of Support Backing

Keep Me breathing

More than 130 Scientists, Medical, Rare Disease and Healthcare Professionals have now signed the Keep Me Breathing Letter of Support. Full signatory list available at the bottom of this page.

Dr. Alexander T Deng

Clinical Lead for Genomic AI. NHS Genomic AI Network: Clinical AI Lead. The Alan Turing Institute. Clinical Geneticist, Yamanouchi Cell Biology Prize Winner, Oxford University

Professor Chris Hancock

Founder and CTO, Creo Medical, Fellow of Royal Academy of Engineering, Chair in Medical Microwave Systems Research, Bangor University. Inventor and author on over 1400 granted worldwide patents, patent applications and journal publications.

Dr. Joe Brierley

Consultant Paediatric Intensive Care & Director of Paediatric Bioethics, Great Ormond St Hospital. Former President of the European Society of Paediatric and Neonatal Intensive Care Medicine

Dr. Martin Samuels

Consultant Respiratory Paediatrician, Great Ormond Street Hospital Chair of the International Advanced Paediatric Life Support Working Group

Charles Spicer

Chairman, UK Department of Health Invention for Innovation Funding Panel (NIHR i4i). Non-Executive Director IXICO, Creo Medical, Kwikscreen, NetScientific

Professor Jolanta Wierzba

Professor of Pediatric Nursing, Medical University of Gdańsk

Dr. Melinda Riccitelli

Professor of Biology, Miracosta, California. USA, President of the CCHS Network

Xenia Proton De La Chapelle

CEO, AtmosR, Strategic Advisory Board member, MarMaRa Institute (Marseille Institute for Rare Diseases)

Casey Rand

Clinical Research and Project Manager, Lurie Children’s Hospital, Chicago 

Dr. Nick Sireau

Founder of Beacon (Findacure), CEO, AKU Society, CEO, Orchard OCD, Author, The Patient Group Handbook

Dr. Nathan Beckouche

Head of Operations, AtmosR, Cellular and Molecular Biologist

Parker Moss

Neurosurgeon, Neuroscientist and Neurotraumatology Specialist, University of Warmia and Mazury in Olsztyn

Andrew Pacey

Director, Pace-Med, Co-Founder, Limflow, 15+ patents registered for Medical devices

Dr. Lucy McKay

Founder of Medics for Rare Diseases

Dr. Anil Lohar

Clinical Fellow in Paediatric Intensive Care Unit (PICU) King’s College Hospital NHS Trust London”

Dr. Steven Abbott

Assistant Professor, Pharmacology, University of Virginia, A.W. Campbell Award winner

Dr. Rick Thompson

CEO: Beacon: For Rare Diseases

Professor Wojciech Kloc

Clinical Fellow in Paediatric Intensive Care Unit (PICU) King’s College Hospital NHS Trust London”

Stats that matter

Pounds raised since January 2023
£ 0
Medical and Rare Disease Professionals backing our goals
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Children waiting on our solution
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Keep Me Breathing Letter of Support

The Full List of Keep Me Breathing Medical and Rare Disease Professionals who have backed the KMB Letter of Support as of 1st July 2023 is below:

NameTitle
Adam FoxBoard Member, The CCHS Network
Ajibike Joanne MartinsSenior Sleep Clinical Physiologist, Great Ormond Street Hospital
Amanda HarrisSenior FNC Practitioner
Chief Nursing Officer’s Directorate
Andrew PaceyDirector Pace-Med. Co-Founder, LimFlow, Named Inventor on 20+ granted Medical Device patents
Anne EvansArundel Care Services Team Member
Ash KentAdvisor to Keep Me Breathing, CCHS Parent
Becky BiddlecombePaediatric Community Nurse
Becky Herbert 
Belinda IbbitsonSpecialist Nurse Consultant
Brett NorrisArundel Care Services Team Member
Callum DavisSpecialist Paediatric Consultant
Caroline FallonRegistered General Nurse
Casey RandClinical Research and Project Manager, Lurie Children’s Hospital, Chicago. Named Author on 75+ Medical Research Publications
Catherine SkyeRegistered General Nurse
Charles SpicerChairman, UK Department of Health Invention for Innovation Funding Panel (NIHR i4i). Non-Executive Director IXICO, Creo Medical, Kwikscreen, NetScientific
Charlotte PowerClinical Services Manager
Christina RavenAssociate Discharge Co -Ordinator
Claire MullenPaediatric High Dependency Unit Nurse
Dan Lovett 
Daniela RosaPresident of Singela, Biochemist
David OakleyFounder of First Aid Safety Training Solutions
Dr. Alexander T DengClinical Geneticist and AI Fellow at Guy’s and St Thomas’ Hospital, Yamanouchi Cell Biology Prize Winner, Oxford University
Dr. Anil LoharClinical Fellow in Pediatric Intensive Care Unit (PICU)
King’s College Hospital NHS Trust London
Dr. Jacek Wolf (GUMED)Assistant Professor, Chief Specialist – acting CMT coordinator, Medical University of Gdańsk
Dr. Lucy McKayFounder of Medics for Rare Diseases
Dr. Lucy NightingaleGeneral Practioner
Dr. Lucyna PałkowskaAnesthesiologist
Dr. Magdalena KilanowskaAnesthesiologist
Dr. Martin SamuelsConsultant Respiratory Paediatrician, Great Ormond Street Hospital, Chair of the International Advanced Paediatric Life Support Working Group
Dr. Max CunnaneENT Specialist
Dr. Melinda RiccitelliProfessor of Biology, Miracosta, California, Clinical Geneticist, President of the CCHS Network
Dr. Nathan BeckoucheHead of Operations, AtmosR, Cellular and Molecular Biologist. France
Dr. Nick SireauAuthor, The Patient Group Handbook. United Kingdom, Founder of Beacon (Findacure), CEO, AKU Society, CEO, Orchard OCD,
Dr. Przemysław KurlandtDoctor
Dr. Raisur RehmanSenior clinical fellow, Neonates
St Micheal’s Hospital, Bristol
Dr. Rick ThompsonCEO, Beacon: for Rare Diseases (Findacure)
Dr. Shikhar Bhaskar 
Dr. Wojciech WasilewskiNeurosurgeon
Duncan Foster FitzsimmonsDirector, Salar Surgical, Alex Moulton Award Winner
Eloise KentTrustee, Keep Me Breathing, CCHS Parent
Emily WadeyArundel Care Services Team Member
Emma ArnoldRegistered General Nurse
Emma LucasTrustee, Keep Me Breathing, CCHS Parent
Emma ReeveClinical Service Manager
Ethel IgnacioRegistered General Nurse
Gail JacksonChief Executive Officer, Solving Kids Cancer
Gemma OrchardRegistered General Nurse
Gladys MuhoveNeonatel Intensive Care Nurse
Graham OrchardParamedic
Heidi BelchamberNeonatel Intensive Care Nurse
Helen EscaygNursing Team Leader
Hugo LourençoVice President, Singela
Jact JenkinsArundel Care Services Team Member
James OakleyCo-Founder, Keep Me Breathing, CCHS Parent
Jane McCrackenRegistered General Nurse
Joan Lovell knight 
Joanna AishRegistered General Nurse
Jon Lovell knight 
Julia PetrettaArundel Care Services Team Member
Karen HerbertRegistered General Nurse
Karen OrayanRegistered General Nurse
Katie hill 
Katie KosovicRegistered General Nurse
Kayleigh RidleyDischarge Team Secretary
Liza AlmogurraRegistered General Nurse
Lorraine AylmoreRegistered General Nurse
Lorraine BruceRegistered General Nurse
Lucy KirbyPaediatric High Dependency Unit Nurse
Lucy McKayChief Executive Officer
Luke StubbingsArundel Care Services Team Member
Maddie FontaniniRegistered General Nurse
Maddy AndersonClinical and Compliance Coordinator
Magda HueckelCEO, CCHS Poland
Maria SwiftRegistered General Nurse
Martin Lovell knight 
Mass PetrettaArundel Care Services Team Member
Megan Anderson 
Melanie Lovell-KnightClinical Nurse Manager
Mikaela GandolfoPaediatric High Dependency Unit Nurse and Researcher
Mike LucasGM, Verve Homecare
Mollie Anderson 
Munira KhanDoctoral Researcher, Principal Researcher, Action for A-T, MSc in Disability Studies
Natalie LunnRegistered General Nurse
Netce SiaSenior Clinical Educator and Registered Nurse
Nicholas BirdChair of Trustees, Solving Kids Cancer
Parker MossChief Ecosystems and Partnership Officer, Genomics England Board of Directors, Non-Executive Director, Cancer Research Horizons
Phillipa BrosnanDischarge Co-ordinator
Professor Chris HancockFounder and CTO, Creo Medical, Fellow of Royal Academy of Engineering, Chair in Medical Microwave Systems Research, Bangor University. Inventor and author on over 1400 granted worldwide patents, international patent applications and academic journal publications.
Professor Jolanta Wierzba (GUMED)Professor of Pediatric Nursing, Medical University of Gdańsk
Professor Wojciech KlocNeurosurgeon, Neuroscientist and Neurotraumatology Specialist, University of Warmia and Mazury in Olsztyn
Rebecca MartineClinical Nurse Specialist, Neuroscience Nursing. Vice President of The CCHS Network
Rebecca StevensRegistered General Nurse
Rosamund SykesFormer Finance Director of the Victoria and Albert Museum, Keep Me Breathing
Rymy SiaRegistered General Nurse
Sabita MuraleedharanRegistered General Nurse
Sarah ChipmanCare Homes Matron
Sarah McbrienArundel Care Services Team Member
Scarlett SilvesterIn-Reach Practitioner and Registered nurse
Sophie WagstaffTrustee, CCHS UK
Stephanie RobertsCo-Founder, Keep Me Breathing, CCHS Parent
Stephanie SalasDischarge Co-ordinator
Tania FlemingRegistered General Nurse and In-Reach practioner
Tomaz ŚliwinskiVice President, CCHS Poland
Tracey ParkerAssociate Discharge Co -Ordinator
Vicky HancottArundel Care Services Team Member
Xenia Proton De La ChapelleCEO, AtmosR, Strategic Advisory Board member, MarMaRa Institute (Marseille Institute for Rare Diseases)
Ziying KePHD Biological Scienses, The Sanger Institute and Cambridge University, Vice President, Cambridge Consulting Network