A day to shine a light on CCHS as a little-known rare condition. It’s the 10th Anniversary of this campaign which aims to inform and educate people about CCHS to support faster diagnosis and the need for more research to develop improved care and treatment for those affected. Help us spread the word!
To mark this year’s campaign, we are launching our very first children’s storybook.
Dreaming of Breathing – The Adventures of Casper & Beau is a magical tale inspired by two friends, Casper and Beau, who share the same rare breathing condition. They plan to meet in their dreams and have wonderful adventures together as they dive for treasure and even take a ride on a whale!
Proceeds from the sale of the book will support our research and development programme.
A launch event of the book is taking place in Hove, our home town on the date below. The Book Nook, an adorable local children’s book shop is hosting our event which will involve a book reading and opportunity to meet the children featured in the story, our very own Casper and Beau. All are welcome to come!
3.45-4.30pm – Friday 27 September 2024
The Book Nook, First Avenue, Brighton & Hove, BN3 2FJ
Cakes and drinks available from the shop cafe
⭐ Share our social media posts across your own accounts
⭐ Use the hashtags #cchs #castinglightoncchs #keepmebreathing #cchsday2024
⭐ Download and use our poster/flyer to promote the book (which includes a QR code to scan to buy)
⭐ If you would like to sell copies of our book please contact gayle@keepmebreathing.com (they cost £8.50 each and can be provided on a sale & return basis)
⭐ Organise a reading of the book in your local nursery or primary school, book shop or even library.
Please contact Gayle if you have any questions or requests. We are grateful for your support:
07710 464151
© 2025 All Rights Reserved. Keep Me Breathing. Registered Charity Number: 1201757.
