BBC Radio Sussex Interview with Keep Me Breathing Founders James Oakley and Stephanie Roberts
- Updates
- October 6, 2025
https://keepmebreathing.com/wp-content/uploads/2025/10/Audio-Updates.mp4
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Read the Patient Voice interview in RARE Revolution magazine with Dad, Mete Redif, as he shares his daughter Mila’s journey with CCHS
- Updates
- August 11, 2025
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Caring in the Shadows: Mum Vicky Shines Light on 24/7 Life-Saving Role for Daughter Tiger-Lily
- Updates
- June 9, 2025
As Carers Week (9 – 15 June 2025) shines a national spotlight on the UK’s seven million unpaid carers, mum Vicky Sykes is speaking out about the unique and relentless demands of parenting a child with Congenital Central Hypoventilation Syndrome (CCHS) .. Vicky and her partner are one of around 150 known families in the UK living with the constant …
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Read spotlight interview in RARE Revolution magazine with nurse, Melanie for International Nurses Day 2025
- Updates
- May 12, 2025
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