Ride for Rare BBC Radio Sussex Interview with Keep Me Breathing Founder James Oakley
- Updates
- July 21, 2026
Click play below https://keepmebreathing.com/wp-content/uploads/2026/07/Copy-of-Copy-of-Audio-Updates-Presentation-2.mp4
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Click play below https://keepmebreathing.com/wp-content/uploads/2026/07/Copy-of-Copy-of-Audio-Updates-Presentation-2.mp4
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Life as a RARE parent can be a mix of worry, uncertainty and fear, but also of great joy, meaning and love. Vicky gives us an insight into parenting Tiger-Lily – the challenges, the importance of having a care circle and most importantly, of living a life of joy. Read Interview
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2026 Goals In 2025, KMB has invested over £175,000 into CCHS treatment research and development as a result of your support. Thank you. Here is some of what we’ve achieved with the time and money you’ve so kindly given: Built VENTO, the world’s smallest portable, non invasive CO2 wearable Filed the patent for VENTO Begun work on stage …
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VENTO, our patent pending CO2 monitor for CCHS patients, has been featured in Med Tech Innovation Magazine, you can click below to read the article. View article
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Read the blog and watch the video here
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We are so thankful for your support over the past two years. As of this week, we can officially announce that Keep Me Breathing has filed its first patent for technology to begin making a real difference to children born with CCHS. This patent is for providing CO2 monitoring in a non-invasive way, via our smart wearable CO2 …
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