Congenital Central Hypoventilation Syndrome CCHS Quality of Life and Caregiver Burden Published Paper. A Summary of Key Takeaways and Learnings
- Updates
- April 16, 2025
A 2025 paper published in the Journal of Pediatric Pulmonology reports the findings of a new study conducted amongst people with CCHS and their caregivers to better understand the impact of CCHS on quality of life. The study data was collected from 78 individuals with CCHS (12 years and over) as well as 193 primary caregivers recruited through CCHS family support organisations …
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