• Newsletters
• February 24, 2025

Join us for an incredible line up of events dedicated to raising awareness and support for those affected by Congenital Central Hypoventilation Syndrome (CCHS). Whether you’re a seasoned runner or just looking to be part of something meaningful, there’s an event for you! From the Run for Rare on February 26, 2025, to the Brighton Marathon and 10K on April …