Good morning! It’s 1:30am on Boxing Day 26th December and I’m up doing the first half of a Casper Night Shift! A Casper Night Shift involves watching him the whole night to make sure he doesn’t pull his mask off so he can receive the ventilation he needs when he doesn’t breathe. On the positive side today we’ve been featured in the Sunday Times!
It seems somewhat fitting that we would be up to see the publication, and Steph will take over from my watch at 3:30am. Still, there is nothing i’d rather do than work on our website, trying to reach potential partners to help fundraise and put everything we have into building our Breathing Pacemaker Treatment so one day soon Casper and other children with CCHS can live a happy life and be allowed to sleep without someone watching over them at all times.
The Technology Exists. The investment does not, yet. We’re changing that. Thank you so much for taking note, please tell your friends and family about us and together, we’re going to make an entire world of difference to these children.
James
