Hi everyone! James here at 10pm. I’m watching Casper while he sleeps (my shift ends at 3:30am when Steph wakes up to take over until we get home tomorrow and have carers again). Tonight I am really excited to announce the launch of our Podcast! If you want to follow the story of children born with a rare disease, no cure, and no treatment except artificial life support through to what I genuinely believe will be gaining a life changing and saving treatment, then listen and subscribe!
The first episode is being recorded at the Waterloo Podcast project inside Brewdog’s new London venue. We have some excellent guests lined up and is intended to be a time capsule from the relative beginnings of Keep Me Breathing through to what I hope and believe will be an end resulting in the first genuine treatment that gives children born with CCHS something that is life saving and life changing. We have some seriously interesting guests coming up and will post the recording on Spotify, Apple Podcasts and the rest as soon as possible!
Leaving you now to go and finish the volenteer recruitment page on the website! Once I do I’ll make add a live link here, we need all the help you can give!
Signing off with a picture of Casper & Max from tonight.
James
