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Home
Medical Endorsement
About KMB
CCHS
What is CCHS For Patients and Parents
CCHS for Professionals
What is the cause of Congenital Central Hypoventilation Syndrome
Stories
Casper’s Story
Beau’s Story
More CCHS Stories
How many patients with CCHS?
CCHS. Mask vs Tracheostomy vs Pacer
CCHS Treatment and Options
Partners
Updates
KMB Updates
News Bulletins
Events
Keep Me Breathing Events
Conferences
Fundraising
Volunteers Needed
Shop
Shop
Cart
Contact
Donate
Rare Neuro / CNS Partnering Cohort – Speaking
June 9, 2025
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Home Ventilation Meeting – Speaking
June 10, 2025
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PCRS Respiratory Conference – Stand
June 10, 2025
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Best Practice Birmingham – Speaking
June 10, 2025
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World Orphan Drug Congress Europe – Speaking
June 10, 2025
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RARESummit25
July 21, 2025
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Festival of Genomics and Biodata London – Speaking
June 10, 2025
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24th Orphan Drugs and Rare Diseases Global Congress – Speaking
June 10, 2025
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ARTP Conference – Speaking
December 15, 2025
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2026 Global CCHS Research Conference – Speaking
June 11, 2026
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We Won't Stop
Relentlessly researching and developing treatments and a cure.
Recent Posts
Ride for Rare BBC Radio Sussex Interview with Keep Me Breathing Founder James Oakley
From charity to MedTech innovator: Keep Me Breathing launches 1,000-mile ‘Ride for Rare’ validation challenge for wearable CO2 monitor
University of Portsmouth News Announcement for VENTO
Front Line Genomics Interview With James Oakley
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Recent Posts
Ride for Rare BBC Radio Sussex Interview with Keep Me Breathing Founder James Oakley
From charity to MedTech innovator: Keep Me Breathing launches 1,000-mile ‘Ride for Rare’ validation challenge for wearable CO2 monitor
University of Portsmouth News Announcement for VENTO
Front Line Genomics Interview With James Oakley
Day In The Life Interview With Tiger-Lily’s Mum, Vicky
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