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  • Medical Endorsement
  • About KMB
  • CCHS
    • What is CCHS For Patients and Parents
    • CCHS for Professionals
    • What is the cause of Congenital Central Hypoventilation Syndrome
    • Stories
      • Casper’s Story
      • Beau’s Story
      • More CCHS Stories
    • How many patients with CCHS?
    • CCHS. Mask vs Tracheostomy vs Pacer
    • CCHS Treatment and Options
    • Partners
  • Updates
    • KMB Updates
    • News Bulletins
  • Events
    • Keep Me Breathing Events
    • Conferences
    • Fundraising
    • Volunteers Needed
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Arundel Dragon Boat Race

  • August 20, 2025
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Open Garden Fundraiser

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Brims & Bubbles

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Jack’s Hair-Raising Challenge

  • April 15, 2025
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KMB Wimbledon Champions Sweepstake

  • May 8, 2025
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South Downs Challenge

  • April 22, 2025
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London to Brighton Cycle Ride

  • April 29, 2025
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Arundel Lido Swimathon & Pool Party

  • August 28, 2025
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Autumnal Open Garden & Exhibition

  • November 17, 2025
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Christmas Skydive

  • August 12, 2025
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We Won't Stop

Relentlessly researching and developing treatments and a cure.

Recent Posts

  • Ride for Rare BBC Radio Sussex Interview with Keep Me Breathing Founder James Oakley
  • From charity to MedTech innovator: Keep Me Breathing launches 1,000-mile ‘Ride for Rare’ validation challenge for wearable CO2 monitor
  • University of Portsmouth News Announcement for VENTO
  • Front Line Genomics Interview With James Oakley

Tag Cloud

CCHS Drug Development Impact Report Mechanical Pacing Sharing the CCHS treatment journey Technology Update

Recent Posts

  • Ride for Rare BBC Radio Sussex Interview with Keep Me Breathing Founder James Oakley
  • From charity to MedTech innovator: Keep Me Breathing launches 1,000-mile ‘Ride for Rare’ validation challenge for wearable CO2 monitor
  • University of Portsmouth News Announcement for VENTO
  • Front Line Genomics Interview With James Oakley
  • Day In The Life Interview With Tiger-Lily’s Mum, Vicky

Recent Comments

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  2. Victoria Sykes on New Interview with our own Eloise
  3. Angela on New Interview with our own Eloise
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