We are so thankful for your support over the past two years. As of this week, we can officially announce that Keep Me Breathing has filed its first patent for technology to begin making a real difference to children born with CCHS….
We promised in our last bulletin that we had more exciting news to update you on, and we do…
May was a big month for us at KMB as, following on from our April bulletin, we successfully and ahead of schedule completed phase 1 of our 3 phase roadmap to creating our advanced breathing pacemaker to help all patients with CCHS sleep freely….
We had an amazing day and turn out on Sunday 6th April for the London to Brighton Marathon and 10k runs….
.Join us for an incredible line up of events dedicated to raising awareness and support for those affected by Congenital Central Hypoventilation Syndrome (CCHS)….
New Year for us all and like many of you, we have many milestones to reach during the year ahead, both in terms of fundraising and in progressing our product development programme…
As you know we have an ambitious plan to fund, develop and bring a new CCHS treatment to market with a 5 year accelerated plan backed by over 130 doctors, scientists and medical professionals. Thank you so much for contributing to this….
Our very first storybook is here…
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