Life as a RARE parent can be a mix of worry, uncertainty and fear, but also of great joy, meaning and love. Vicky gives us an insight into parenting Tiger-Lily – the challenges, the importance of having a care circle and most importantly, of living a life of joy. Read Interview
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2026 Goals In 2025, KMB has invested over £175,000 into CCHS treatment research and development as a result of your support. Thank you. Here is some of what we’ve achieved with the time and money you’ve so kindly given: Built VENTO, the world’s smallest portable, non invasive CO2 wearable Filed the patent for VENTO Begun work on stage …
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