• Updates
• June 9, 2025

As Carers Week (9 – 15 June 2025) shines a national spotlight on the UK’s seven million unpaid carers, mum Vicky Sykes is speaking out about the unique and relentless demands of parenting a child with Congenital Central Hypoventilation Syndrome (CCHS) .. Vicky and her partner are one of around 150 known families in the UK living with the constant …